ENTWINE Survey on Informal Care

“There are only four kinds of people in the world: those who have been caregivers, those who are currently caregivers, those who will be caregivers and those who will need caregivers.”

Former First Lady Rosalynn Carter



Caring for a spouse, partner, family member or a close friend is an important role that you may experience in your life. It may start by driving your loved one to get groceries or to take them to medical appointments/the doctor. Later, you may find yourself taking more time off from work in order to look after your loved one due to their health needs.

No matter where you are in the journey of informal caregiving or whether you receive care from your loved one, we are interested in hearing about your unique experiences as a caregiver or a care recipient.
You may be interested in taking part in the survey we prepared to support people like you.

Take the survey
Who can take part?

If you are 18 years of age or over and you provide or receive informal care as a result of a chronic illness, disability or other long-lasting health or care need, then you may be eligible.

ARE YOU A CAREGIVER?

Do you provide care to a spouse, adult child, partner, relative, friend or neighbour?

Take the survey

ARE YOU A CARE RECIPIENT?

Do you receive care from a spouse, adult child, partner, relative, friend or neighbour?

Take the survey


ENTWINE is an exciting new international project being run by a group of young researchers that focuses on informal caregiving. Informal caregivers are those who provide care to a relative or friend with a chronic illness, disability or other long-lasting health or care need.

Throughout Europe, people are living longer due to medical advances. At the same time, the number of informal caregivers has decreased in recent years. This has led to some people not receiving care, as well as increased the challenges faced by informal caregivers. Without people like you - the healthcare systems around Europe would face significant challenges. This survey is devoted to hearing your experiences about giving or receiving care.

Countries involved
We are carrying out this large research survey across Germany, Greece, Italy, Ireland, Israel, Poland, Sweden, the Netherlands, and the UK.
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Meet our International Research Team and Institutions


Our team consists of researchers with expertise in Health and Clinical Psychology, Health Economics, Public Health, Social Policy, and Health Technology (eHealth). We also work closely together with a wide range of public partners and organizations.



This is our Research Team:



The ENTWINE Survey on Informal Care is being carried out by four top research universities and academic institutions with global impact.